 HELP BRING "RESEARCH to REALITY"SATURDAY JUNE 12, 2010 |
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ROLL OR RUN TO REVERSE RETT 5K race/ 1 mile walk-roll City Park in Iowa City ******************************************* REGISTER 8:30AM-9:00AM @ SHELTER 9 5K STARTS AT 915A 1 MILE TO IMMEDIATELY FOLLOW *5K WILL BE TIMED* BY ANITA RUN CLUB
PACKET PICK-UP: Friday June 11 3p - 7p RESIDENCE AT 431 2ND AVENUE ( 1 block south of Hoover Elementary School )
RACE COORDINATOR Heather Kauffman ph. 712-250-0083 CLICK ON: hkauffman@midlandsnet
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Due to help from our sponsors all fees for registration and t-shirts will go to our total donation for Clint Black's campaign "RESEARCH TO REALITY"
Money donated will go directly towards research avenues focused on finding treatments, and eventually reversing Rett Syndrome for our girls. **************************************************** ACCOMODATIONS Rooms are blocked at these hotels located off I-80 QUALITY INN: 319-354-2000 TRAVELODGE: 319-351-1010
*SAY YOU ARE RESERVING FOR KATE KAUFFMAN'S FUNDRAISER TO GET A DISCOUNTED RATE |
What is Rett Syndrome?
Rett Syndrome is a brain disorder, it has a known genetic cause that was discovered in (1999) and recent research has proven the theory of reversibility in mice (2007). It exclusively affects girls at the rate of 1 birth every 5 hours. Those diagnosed have no purposeful hand use due to their repetitive hand movements, hand wringing, and mouthing. Speech is lost, seizures develop and scoliosis occurs. More than half of the girls and women lose their ability to walk and will require assistance with even the most basic of life's daily activities. This disorder is on the AUTISM-SPECTRUM and is often characterized as the "Rosetta Stone", or the key that will help unlock treatments and cures for other disorders with genetic links including autism, schizophrenia, Parkinson's, anxiety and autonomic nervous system disorders. Although these girls are the victims of one of the most cruel biological accidents imaginable, we can see a light at the end of the tunnel. By participating in our day of events, you are giving a "voice" to these silent angels and letting them know their futures do matter. Our daughter Kate is one of approximately 25 known cases of Rett Syndrome in Iowa. We hope you can find a way to make it a successful day for all of us affected by Rett Syndrome. Nick & Heather Kauffman Grace, Joseph, Kate and Zachary
If you are unable to attend either event you may donate online to our fundraiser for Kate go to |
BENEFIT CONCERT9 TO 1AM Jeff Mattison acoustic show 530p-730p Silent Auction starts 500p and bidding closes at 830p click here: SALE BILL WildWood Smokehouse & Saloon located in Iowa City 4919 Walleye Dr SE Iowa City, IA VISIT WILDWOODSALOON.COM
EVERYONE WELCOME EVENT IS OPEN TO PUBLIC COVER STARTS AT 9P Come and enjoy good food, live music and raise awareness for a great cause. The reversal of Rett Syndrome! FREE-WILL OFFERING TO GO TOWARDS "RESEARCH to REALITY" CHAIRED BY CLINT BLACK
PLEASE COME AND SHOW YOUR SUPPORT!
TO LEARN MORE ABOUT RETT SYNDROME JUST CLICK:
******************************************** IF YOU WOULD LIKE TO MAIL A DONATION HERE IS THAT INFORMATION:
MAKE CHECKS PAYABLE TO: IRSF/KATE KAUFFMAN SEND TO: HEATHER KAUFFMAN 1143 180TH STREET ADAIR,IA 50002 IRSF will send you a receipt with tax ID information ********************************************
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